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 Post subject: Re: A Cancer Journal
Unread postPosted: Fri Mar 10, 2017 11:58 am 
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Illustrious Master Hunter
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Location: In the bushes watching. Always watching.
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I know. Chin up though. I mean. A concrete diagnosis is GOOD. I know you've already been through so much w/current cancer treatments but if this is leukemia then ................................ that can be treated too! And more importantly is curable in adults. It's rough but try to keep that in mind? :hug:

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 Post subject: Re: A Cancer Journal
Unread postPosted: Tue Apr 18, 2017 8:07 am 
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Artisan Hunter
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Realm: Greymane, Rexxar, Staghelm, & Nesingwary
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I am happy to announce that I DO NOT have leukemia!!! Woot woot!

My biopsy (most PAINFUL thing I've ever experienced ... I do not recommend) was negative and it looks like my WBC is slowly coming back down. All other blood tests looked really good too! My hematologist/oncologist is going to monitor me again in 8-9 months just to make sure but otherwise she feels pretty confident about the situation.

She did inform me about some abnormality with my thyroid counts and a recent ultrasound had shown enlarged lymph nodes (again) in my neck. My endocrinologist doesn't seem too alarmed atm ... I guess which is good. He's pretty diligent at informing me if something looks off or worrisome. I haven't had the CAT scan yet. I think he ordered for it to be done sometime in May/June.

On a happier note, my chronic pain and fatigue has ebbed enough for me to enjoy basic activities again. Also, my hair has ceased to shed by the pound! I'm finally able to emit some level of confidence when out in public. I feel almost normal again ~ which is a small miracle in itself! My depression has also improved immensely these past few weeks. I certainly don't feel all doom & gloom like I was a couple of months ago! If this continues and all looks good from a remission standpoint, I am contemplating returning to work again on a part time basis.

Thanks for sticking with me Petopians! Happy Hunting!

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Last edited by Niabi on Tue Apr 18, 2017 9:44 am, edited 1 time in total.

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 Post subject: Re: A Cancer Journal
Unread postPosted: Tue Apr 18, 2017 9:38 am 
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Joined: Mon Jan 17, 2011 6:22 pm
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yay so happy for you! *hugs*


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 Post subject: Re: A Cancer Journal
Unread postPosted: Tue Apr 18, 2017 10:21 am 
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Location: Sweden.. Although most of the times i live in an imaginary world... much nicer then the real one
Realm: Azol-Nerub
Gender: Female both in the game and RL
YAY soo happy for you!!!

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 Post subject: Re: A Cancer Journal
Unread postPosted: Tue Apr 18, 2017 7:58 pm 
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Illustrious Master Hunter
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That's awesome news Niabi. :hug: I'm so happy to read you're doing better.

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 Post subject: Re: A Cancer Journal
Unread postPosted: Wed May 03, 2017 7:39 pm 
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Illustrious Master Hunter
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I almost never visit the off-topic forum, so I've somehow missed this thread. I read all of it though, and all I can say is that it must take an amazingly strong person to go through all you've been through. I'm so sorry it's been such a struggle, but thankfully it sounds like things are finally looking up. And you never have to apologize to us for anything! Keep working on getting better, and keep us posted! :hug:

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 Post subject: Re: A Cancer Journal
Unread postPosted: Fri May 05, 2017 9:58 am 
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Artisan Hunter
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Awe, thanks everyone!

I'll let you know a little secret ... not having a thyroid makes you feel like an irrational loon! I'm still not balanced on my medications but this is the closest I've been to feeling "normal" since the surgery. The leukemia scare I had was some extra fun thrown into the mix along the way :lol:

The chronic pain and fatigue I'm experiencing hasn't improved any and getting my doctors to acknowledge that these are persistent, everyday symptoms has been challenging. Normally, most patients would/should feel better by now but I am completely bed-ridden on my worst days. I do have good days but it's kind of like my body is on an internal timer; the more I do the faster the timer runs down. I've been hesitant to return to work for this reason. I can't seem to keep up a normal pace (consistently) anymore, both physically and mentally. Disability doesn't want to pay up because they don't/won't acknowledge everything I've been through ... and am still going through ... to warrant the receival of benefits, so I'm waiting for a date to be set so I can appeal my case in court.

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 Post subject: Re: A Cancer Journal
Unread postPosted: Fri May 26, 2017 11:46 pm 
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Realm: Jubei'Thos (US/Oceania)
I'm not around here as much as I used to, but I'm very glad to hear there have been some good news! And if you haven't already encountered it, perhaps spoon theory can be helpful in explaining to people?


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 Post subject: Re: A Cancer Journal
Unread postPosted: Sat May 27, 2017 4:16 pm 
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Thank you for linking that post Anyia.

I had no idea of what Spoon Theory was before I became sick but am now all too familiar with the concept. I think it is important for everyone to understand this theory and imagine themselves living day-to-day like this, everyday, for the rest of their lives. It breaks my heart that so many people, myself included, are misjudged and misunderstood because of our invisible illnesses. Lazy, unmotivated, out-of-shape, anti-social, hypochondriac, liar, homebody, and insecure are among some of the words I've heard personally.

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Last edited by Niabi on Wed Jun 21, 2017 8:36 am, edited 1 time in total.

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 Post subject: Re: A Cancer Journal
Unread postPosted: Wed Jun 21, 2017 3:50 am 
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Artisan Hunter
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Sooo ... yeah. Me again.

Something still isn't right and we can't seem to figure out what it is :cry:

What we do know is that my lymph nodes have continued to grow since my update post back in April. My thyroglobulin (cancer marker) remains low which would indicate that the thryroid cancer is not returning but along with my enlarged lymph nodes, my white blood cell count again is pretty high. I haven't experienced any colds or flus which might affect these circumstances so that's not it. My bone marrow biopsy came back negative so that's not it either. This is sooo frustrating!

The next course of action is to have two biopsies done of the largest lymph nodes in my neck (I have one on each side). Hopefully, that can tell me what in the hell is going on here! I am pretty sure it's not thyroid cancer again but what the heck could it be ... I don't know ... a secondary cancer maybe? An infection caused by a burst cyst perhaps (I also have PCOS) or a malignant tumor hidden somewhere (yep, I also have NF1). Nothing surprises me anymore.


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 Post subject: Re: A Cancer Journal
Unread postPosted: Thu Jun 22, 2017 6:25 pm 
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Illustrious Master Hunter
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I hope you get to the bottom of it quickly. :(

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 Post subject: Re: A Cancer Journal
Unread postPosted: Thu Jun 22, 2017 8:50 pm 
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Thanks Dew. I'll keep the community posted as the situation develops.

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 Post subject: Re: A Cancer Journal
Unread postPosted: Thu Jun 22, 2017 9:10 pm 
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Illustrious Master Hunter
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I hope it's nothing serious, but I'm glad you're getting it checked out.

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 Post subject: Re: A Cancer Journal
Unread postPosted: Thu Jun 22, 2017 9:41 pm 
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Artisan Hunter
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Yep yep. Being the special little snowflake that I am I can never be too cautious about my health now. Have to make those doctors earn their paychecks, teehee. ;)

Just got back from visiting my primary doctor today. Needed x-rays of my back due to severe pain and muscles spasms sooo maybe that will tell me something too. Though I don't necessarily know if it's related.

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