A Cancer Journal
- Niabi
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A Cancer Journal
This first post will repeat what I've written before, only in further detail.
As some of you already know, I was diagnosed with papillary thyroid cancer on September 4, 2014. As far as cancers go, I have what medical professionals would consider a "good" type of cancer in that the long-term survival rate is 90% and higher. My age (35) is also a good sign, as patients who are very young (less than 20) and much older (45+) have less positive outcomes. Slight rant about this ~ The fact that people out there consider thyroid cancer a "good" type of cancer really pisses me off! No cancer is "good" cancer! I still have to undergo surgery and radiation therapy (thankfully no chemo at this time), and put my body through hell, and they consider this "good"? I don't think so!
Anyhoo, I met with my surgeon to discuss the procedure and he informed me that the cancer has spread significantly to the surrounding lymph nodes. He will need to perform a full neck dissection at the same time as my thyroidectomy to remove all of it. The procedure itself is expected to take between 4 and 6 hours, so long as no complications arise, but I'll still need to stay in the hospital afterwards (3-7 days) so that I can be monitored thoroughly. I'll have huge scars running up and down both sides of my neck and a scar running across in the shape of a huge H - but it's better than having cancer so I guess I'll learn to cope. My cancer will then be staged and follow up treatment/physical therapy can begin.
About a month later, I'll be placed on a low iodine diet for two weeks in preparation of my I-131 treatment. Since the thyroid gland loves to soak up this mineral, any residual cancer will basically be burned (doesn't sound fun) out by the radiation. I'll be placed in isolation for 3 to 4 days so I don't contaminate my loved ones and pets. Anything I come into contact with will become contaminated and need to be properly disposed of. Once my isolation period has ended, I'll still be radioactive but I will not be toxic to others (still skeptical about this - I may make them keep me or try to make other accomodations for an additional week just to be on the safe side). A body scan will be ordered to ensure there is no more cancer left anywhere. If I recieve the "all-clear", I can resume my normal life and return for checkups every six to twelve months. If there is more cancer, I'll then undergo chemo and additional radiation treatments and/or surgeries.
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- Jurz
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Re: A Cancer Journal
Sig drawn by the amazing Lupis! and avatar drawn by the wonderful Senna!
Re: A Cancer Journal
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- Dewclaw
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Re: A Cancer Journal
- Anyia
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Re: A Cancer Journal
- zedxrgal
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Re: A Cancer Journal
The absolute best advise I can give is yes have a HUGE support group. Especially with other cancer patients. This will help you a lot. Learn all you can. There's TONS of information out there. So much in fact try not to bombard yourself.
And please let us know how you're doing when you can. again.
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- Niabi
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Re: A Cancer Journal
I received word that my surgery will be scheduled for Wednesday, October 8th. If there is a cancelation beforehand, my appointment will be bumped up to Tuesday, September 23rd. I'm really hoping for the September date; the sooner this cancer is out of me, the better.
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- Ana
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Re: A Cancer Journal
HUGE thanks to Makoes, Syleye, FeralClaw, Pingupuff, Karin,Bowno, Varethyn, Ashaine, Kishay, Aki (Täräin13), my friend Marie and some lovely ppl on Fligth Rising for my lovely sig
- Niabi
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Re: A Cancer Journal
Eating has definitely been a challenge for me; that's for sure!Syleye wrote:Stay strong and please, please eat well and keep your strength up
Before my diagnosis, I experienced month long episodes of vertigo (I'm not kidding either, my longest one lasted from May to about mid July) along with severe nausea and migraines. It was not fun! I couldn't keep anything down and would sleep pretty much all the time. In the process, I lost about 20-25 lbs. My appetite has improved a little since then but I have many days where the thought of food puts me off completely.
I try and make myself eat at least one meal everyday and fill the rest of the day drinking lots of water, apple juice, and Sprite.
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- Dewclaw
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- Niabi
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Re: A Cancer Journal
I've definitely considered it. I love juicing! Right now, my husband treats me with the occasional Naked Juice whenever I don't feel like eating food. I'd also love to invest in an electric juicer before I go on my diet.Dewclaw wrote:Would a smoothie be an option for you. You can pack it with nutrients (ex: spinach - can't taste it) and a drink may be easier for you to stomach.
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- Dewclaw
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- Niabi
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Re: A Cancer Journal
I'll definitely take that into consideration. Thanks Dewclaw!Dewclaw wrote:For someone in your position, I'd recommend something like a nutribullet over a standard juicer. Smoothies retain more fiber and nutrients and your body needs all it can get. Plus there are some really awesome smoothie recipes out there.
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Re: A Cancer Journal
- Niabi
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Re: A Cancer Journal
I wound up getting a nice, inexpensive blender so that my husband or I can make fruit and veggie smoothies during the surgical recovery and radiation preparation. Thank you again everyone for your suggestions.
I'm really going to miss eating sushi for the next couple of months. I can get by ok without having the rest of my favorites but sushi ... sushi just feeds my soul!
My mom mailed me some pajama sets (2) that I can wear while in the hospital ... because nothing is worse than walking around dressed in a paper gown with your ass hanging out the back ! She's also flying down from Northern California to be with me during and after the surgery. Our relationship hasn't always been a stable one but I do find myself comforted by the thought of having her near me during this traumatic time. No matter how old I get, I'll always need my mom in my life.
I also finished filling out my Advanced Directive and Financial Power of Attorney paperwork (in case anything bad should happen to me, it's smart to be legally prepared). Just need to get these suckers noterized and that will be that.
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Re: A Cancer Journal
Inspirational 'speech' over. I try to sound like I know what I'm talking about, but I generally have no clue
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- Niabi
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Re: A Cancer Journal
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I'm going to ramble a bit in the next few paragraphs ... I just have so many thoughts coursing through my brain at the moment and I can't get it to shut up ...
1. A big part of me wants this to be over and done with but the other part is apprehensive of starting a life long journey with medications, doctor's visits, and therapy. The radiation treatment terrifies me greatly but I understand it is a necessary step in the healing process.
2. I'm not sleeping well (4-6 hours at most), yet I'm unbelievably tired to the extent of being lethargic. Appetite is normal for now so that's a good thing. My mood is all over the place; I'll go from calm and levelheaded to uncontrollable bawling and severe depression to cracking jokes to a compulsive need to clean and sanitize EVERYTHING to complete "bitch mode" to being loving and sentimental ... bah!
3. Note to husband: "RUN AWAY! Run away while you still can! For the love of all that is good and pure in this world, save yourself!"
4. Woah! I just had a really bad dizzy spell! That's not good!
5. Tired again now. Going to try and get in another nap.
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to everybody! See you all again post-surgery
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- Dewclaw
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